Warning:
potentially upsetting stories about children dying
Sorry
it’s been ages since writing on here. The internet at the compound has been
broken for almost 2 weeks so I’m using this weird internet USB stick with my
sim card that’s very temperamental + slow. Sorry it really can’t cope with
pictures!
I
finished my 3-week block in paeds yesterday and started surgery today. I was
really happy about this. Those 3 weeks have probably been the most stressful 3
weeks of my life. That’s a bit of an exaggeration, but still it has been
insane. I have never had so much responsibility over life and death (clearly I need to get a grip back home if this isn't as stressful as some other much more mundane things!).
Over
the last 2 weeks I have probably been present at the death of about 15
children, almost all of which I was either the most senior person there or
equal most senior with the other med student Liz. Our only qualified
paediatrician left a couple of weeks ago so we’ve been running the paeds ward
with the physician assistants – who are brilliant + definitely senior to me,
but often not there when we’re called to see dying babies. The two of us have
done so many paediatric resuscitations I’ve lost count. There have been so many
that I’ve even been called to 2 since yesterday morning when I officially
stopped working on the paeds ward. Thankfully some of the resus’s have been
successful, but sadly most are not.
Some
deaths have been really upsetting, particularly when the child has been there a
while. Most of them however arrive to the hospital peri-arrest (ie on the verge
of stopping breathing/heart beating). There’s a huge social problem with
healthcare here. I think a lot of it is parental education – so many of these
kids have been ill for days before coming in, but the parents are out in the
fields working all day and don’t really pay that much attention or don’t know the
signs of when their child needs medical care. There are also difficulties with
transport, many patients travelling all day to get to the hospital. Another big
problem that I find quite concerning is that all too often these children will
be referred from small community clinics where they will have been sat there receiving
very little care a few days, getting sicker and sicker, until eventually
the parents decide to take them to hospital, by which time it’s too late. There
is also ‘local treatment’ – the witch doctors, whose treatment is recognisable
by little cuts on the skin over the site of problem.
The
hardest death was probably my 2nd resuscitation – a little two year
old with cerebral malaria. He had developed a severe pneumonia probably from
aspirating during febrile convulsions (ie he breathed in vomit when fitting,
the fits being caused by the high temperature + malaria in the brain). Within
minutes of his arrival he stopped breathing, but still had a heart beat. As
I’ve said before there are no ventilators here, so Liz and I bagged him for an
hour and a half (gave breaths using a mask fitted to a rubber globe that you
squeeze and it pushes air into their lungs) - really the only kind of resuscitation available here. All of that time his little heart
kept beating and I had this vague hope that if we kept going for long enough
his antibiotics might have time to kick in… but the combination of not
breathing properly during the seizures and the pneumonia had left him with
fixed + dilated pupils – a sign that he was severely brain damaged beyond hope
of recovery. Eventually Dr Coppola, the hospital’s head doctor who had been
coming to see how we were getting on, told us to stop. That was probably one of
the hardest things I’ve ever done, knowing that we had been keeping him alive,
and then listening as his heartbeat slowed down. Then his mother told us this
was her 4th child who had died. We were all really upset.
It
really makes you question though, surely
after the first 3 children dying, wouldn’t you think to come to the hospital a
little bit earlier? There has got to be some kind of educational or cultural or
financial issue here stopping the parents from bringing their kids in sooner.
It’s not really something I have any clue how to address.
Not
all of paediatrics has been sad though. The little 3 year old boy I mentioned a
while ago with the chest drain made a good recovery and was discharged a few of
weeks ago. I saw him for follow up in clinic the next week. It was great to see
his cheeky little face again. By the time he was discharged he’d stopped being
scared of me, as his parents were so friendly + I hadn’t stuck him
with any needles for a really long time! Every time I went to check on him on the ward would always give me a grin and
play hide + seek behind his mum. It was great to see him again and doing so
well, although when it came to time for him to leave clinic he ran up to the door
and opened it and was gone before his mum could stop him. He had definitely had
enough of the hospital!
The
two kids from last post had really good outcomes too. The boy with the status
epilepticus made a full recovery and was discharged home after a couple of days
of observations. The meningitis kid took a bit longer to recover and was
discharged after about a week or two with some hearing loss and possibly a mild
cognitive impairment but essentially back to normal. (Turns out he’d been at a little
clinic for 3 days before coming to the hospital, presumably not on the
appropriate antibiotics as he’d been getting progressively worse and got better with us as soon as he was started on them).
So
although it is really hard working here, it’s also really rewarding. I’ve spent
most of my time here feeling pretty out of my depth, but turns out that’s a
brilliant way to learn – if you don’t learn quickly, patients die, so there’s
no difficulty in getting motivated!
Now
that I’m on surgery I think I will be shouldering a lot less responsibility –
unlike my final two weeks of paeds, there’s an actual qualified surgeon in
charge.
Tomorrow
I’m having my first full day off since getting here, besides ones where I was
puking – woopie! I’m going to Tamale with the Coppolas –the head doctor and her
family. They have 2 really cute girls (aged 6 + 9) who are a great comic relief
in what can sometimes be a really depressing place to live.
Wow - you've really gotten some solid experience, Alex! Your account of the kid who aspirated during a seizure is nearly identical to the one I bagged for almost an hour that day when Joanna was hiking at Nakpanduri. Same exact sequence of events. So sad. But at least now you're moving on to procedures and such, and you're already the debridement + skin graft expert, so you'll be running the OR by next week, right?
ReplyDeleteSpeaking of chest tube kids, is my little 2 year old with the tube discharged? He had an impressive empyema too (though not as big of a surprise as your kid was...). I imagine he probably went home a week ago or so. Anywho, keep me updated!
Hey Caitlin :) yeah he was discharged maybe a week ago. I expect Liz will see him for follow up in clinic this week. I'll ask her. He was super cute too.
DeleteAlso you know our resp distress kid in NICU 2 - well he was discharged about a week ago too. If I'm honest I'm not sure this was the right decision cos he was still in resp distress, but had somehow managed to survive that long, so hopefully he'll continue to recover. I'm just worried he'll have died at home and we wouldn't hear about it. I've asked Liz to let me know if/when he comes in for follow up in clinic too.
xx
Oh my!! It breaks my heart that so many children have died. Especially when I know that many/ if not most could have been prevented. Children are not just big adults. There are meticulous details that are key in management which is often not done there and understood. They need a full time pediatrician there!! Keep up the good work Alex!
ReplyDelete